April 2019:

  • Participation in the submission of the pCODR Patient Input Response for Larotrectinib with the Canadian Cancer Survivors Network and other charities.

March 2019:

  • Presentation at the pre-conference workshop on Informed Consent for the Clinical Trials Ontario conference.  (Antonia Palmer)

February 2019:

January 2019:

  • Participation in the submission of the pCODR Patient Input Response for Unituxin for neuroblastoma cancer with CORD and Ontario Parents Advocating for Children with Cancer (OPACC).  Recommended for reimbursement by pCODR.

October 2018:

  • Presentations at the Pediatric Oncology Group of Ontario (POGO) Conference.  (Patrick Sullivan and Antonia Palmer)

September 2018:

June 2018:

  • Submitted the Patient Input Response for the Pan Canadian Oncology Drug Review (pCODR) with the Leukemia and Lymphoma Society of Canada (LLSC) and Ontario Parents Advocating for Children with Cancer (OPACC) for the CAR T-cell therapy called Kymriah (Novartis).

May 2018:

April 2018:
  • Meeting with the Federal Minister of Health, the Honourable Ginette Petitpas Taylor to present the Ac2orn proposal to address inequitable access to promising early phase clinical trials for children, adolescents, and young adults (CAYA) outside of their home province and to develop a relationship with Health Canada to develop a national strategy for CAYA cancers.  The meeting was also attended by Kathy Brodeur-Robb, Director of the C17 Council and Helena from Helena's Hope: Pathways to More Children Surviving Cancer.

  • Presentation to the PROFYLE meeting (Precision Oncology for Young People) (Patrick Sullivan).

January 2018:

  • Chaired BioCanRX Cancer Stakeholder Alliance Meeting (Patrick Sullivan)

November 2017:

  • Presented to Canadian Institutes of Health Researchers Young Investigators Meeting on the Importance of the Patient Voice in Research (Patrick Sullivan)

September 2017:

  • Presentation to Clinical Trials Ontario Patient Committee (Antonia Palmer).

March 2017:

  • Wrote the Patient Input response for the blinatumomab pCODR submission with input from the Leukemia and Lymphoma Society of Canada and the Ontario Parents Advocating for Children with Cancer (OPACC). Blinatumomab was recommended for reimbursement by pCODR.

June 2016:

  • Training session created and provided at the C17 Annual General Meeting  on the topic of "Advocacy" (Antonia Palmer).

May 2016:

  • Ac2orn involved in the planning for the 2016 September pediatric cancer awareness month.
  • Presentation at a CIHR Scientific Council Meeting on Epigenetics (Patrick Sullivan).
  • Patrick Sullivan was a co-author on a GA4GH Data Sharing paper published in Nature Medicine.

April 2016:

  • Presentation to the McMaster Children’s Hospital pediatric oncology team about Ac2orn (Antonia Palmer).
  • Training session provided by Jane Perlmutter to Ac2orn.
  • Two new members joined Ac2orn.
  • Patrick Sullivan joined the Executive Planning Committee for the Cancer Research Conference to be held in BC in November 2017.
  • Presentation to all of the residents at BC Children’s Hospital on how better to effectively engage with patients and families (Patrick Sullivan).

February 2016:

  • Presentation about Ac2orn to the annual SickKids Oncology Update meeting (Antonia Palmer).
  • Patrick Sullivan chaired a panel that presented on the role of patient advocacy at the Terry Fox Research Institute Research Day for the Pacific Node of Terry Fox Research Institute (TFRI).

January 2016:

  • Presentation to the Western Canadian Pediatric Researchers Conference (Patrick Sullivan).
  • Presentation of a poster at Stand Up to Cancer Scientific Meeting on the role of advocacy in the scientific process (Patrick Sullivan).
  • Became involved with the Mobilizing Opportunities to Systematically Address Issues Impacting Caregivers of Children (MOSAIICC) project with the Canadian Cancer Action Network (CCAN) (Antonia Palmer and Chris Collins).
  • Patrick Sullivan joined the Board of Directors of Childhood Cancer Canada.

December 2015:

  • Patrick Sullivan joined the Board of Directors of the Coast to Coast Against Childhood Cancer Foundation.

November 2015:

  • Presentation with C17 at the Canadian Cancer Research Alliance (CCRA) meeting (Patrick Sullivan).
  • Presentation at the Canadian Cancer Clinical Trials Network (3CTN) Annual Meeting (Patrick Sullivan and Antonia Palmer).
  • Presentation at St. Justine on Ac2orn (Patrick Sullivan).
  • Ac2orn helped to author a response to pCODR on Health Technology Assessment with Dr. Avi Denberg (Antonia Palmer and Patrick Sullivan).

September 2015:

  • Ac2orn was a member of the Big Book of Care campaign which was an alliance of 17 different cancer charities and groups across Canada.
  • The first Order of the Oak was presented to Terry Fox and the Fox family.

“The greatest achievement was at first and for a time a dream. The oak sleeps in the acorn, the bird waits in the egg, and in the highest vision of the soul a waking angel stirs. Dreams are the seedlings of realities.” ~ James Allen

Events and Accomplishments